father and son with down syndrome
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Rarely in basic or clinical research do we have the thrill of seeing results translated into therapies that transform lives. Such an opportunity now exists within the Stanford Institute of Neuro-innovation and Translational Neurosciences where critical discoveries in the laboratory are being translated into viable treatment strategies for patients and their families.
Craig Heller, PhD, Director

SUMMER RESIDENTIAL PROGRAM for students with intellectual and developmental disabilities and neurodivergent students

MORE INFO: Click HERE

Interested ? :  Click HERE

OVERVIEW

This 5 day, 4 night program on Stanford campus provides students with intellectual or developmental disabilities (IDD) or neurodivergent students a taste of a college experience. There will be robust content  and useful learning and fun, social activities during the day. Evenings will be filled with relaxed student-to-student interactions and experiences such as eating in a dining hall, living in a college dorm, and just hanging out with peers.

Please note: this is open to neurodivergent students and students w/IDD (not just down syndrome.)

Robust Program Content

  • Writing narrative
  • Email/text writing & etiquette
  • How to use AI effectively
  • Health/Safety - eating, exercise, social media
  • Employment preparation
  • Social activities
  • Independence skill development
  • Unstructured peer-to-peer time with Stanford students
Questions: info_sdsrc [at] stanford.edu

World Down Syndrome Day Celebration

A great day with self advocates and families as we celebrated a Taiko Drum performance and a Sports Day with Stanford Athletes.

2023 Stanford Down Syndrome Conference: Adult and Transition age topics

PROGRAM - CLICK HERE

Adult Medical - Peter Bulova, Director, Adult Down Syndrome Center, Univ of Pittsburgh/UPMC; Co-PI, Alzheimer's Biomarker Consortium-Down Syndrome, Pitt

Mental Health - Dennis McGuire, 28 years of clinical experience, served over 6000 teens and adults; authored “Mental Wellness of Adults with Down Syndrome"

Regression - Jon Santoro, nation's top expert on Down Syndrome Regression Disorder, Assoc Professor, Neurology, Keck School of Medicine, USC

College, Living, Employment, Legal options  - Leadership from California State Council on Developmental Disabilities, Think College and self advocates

Many thanks to: SVDSN, DSCBA, T21RS and The Matthew Foundation

For Video Recording - $129

2022 Down Syndrome Conference

Rafael Pelayo, MD, President, California Sleep Society and Clinical Professor, Psychiatry & Behavioral Sciences, Stanford Center for Sleep Sciences Medicine

Caroline Okorie, MD, MPH, Clinical Assistant Professor, Pediatrics – Pulmonary Medicine, Stanford School of Medicine

DOWNLOAD DR. PELAYO'S PRESENTATION

Download Dr. Okorie's Presentatation

 

Noemi Spinazzi, Co-Chair, DSMIG DS-Autism Dual Diagnosis Subcommittee and Medical Director, UCSF Benioff Children’s Hospital Oakland Down syndrome clinic

Teresa Unnerstall, Author of “A New Course: A Mother’s Journey Navigating Down Syndrome And Autism”

Please visit The Matthew Foundation website for the presentation slides.

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Our mission is to help people with Down syndrome lead healthier and happier lives by rapidly and effectively applying research discoveries to useful treatments.

Father looking at giggling baby

Families with a member with Down syndrome face many challenges and have many questions.  We present on this website an extensive and curated collection of references, articles, blogs, news articles, and essays that will be valuable sources of information.

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Question and Answers (Q&A) on COVID-19 have been developed to help you support your loved one with Down syndrome. These documents have been endorsed by all the United States Down syndrome organizations, the Jerome Lejeune Foundation, and Trisomy 21 Research Society.

Get involved!

 

  • Support activities for kids and adults with Down syndrome

  • Learn about Research Studies

 

Email info_sdsrc [at] stanford.edu (info_sdsrc[at]stanford[dot]edu)