Rarely in basic or clinical research do we have the thrill of seeing results translated into therapies that transform lives. Such an opportunity now exists within the Stanford Institute of Neuro-innovation and Translational Neurosciences where critical discoveries in the laboratory are being translated into viable treatment strategies for patients and their families.
Celebrating Disability Awareness Month - California Disability Conference
Dual Track: Parents/Professional Conference and Self-Advocate/Individuals with Developmental Disabilities Conference
REGISTRATION LINKS
Date: Friday Afternoon & Saturday, Oct. 24 & 25 (Self-Advocate Conf, Sat. ONLY)
Location: Oak Lounge, Tresidder Union @ Stanford University
Parent/Professional Conf: Keynote "Health Management with Adults with Down Syndrome" Brian Chicoine, Adult Down Syndrome Center, Advocate Medical Group and Board Director, Down Syndrome Medical Interest Group
Self-Advocate Conf: Theme "Our Disability is Our Super Power", designed by and for self-advocates and those with developmental disabilities
Conference Fee: Dual Track; check with your regional center on possible reimbursement or email info_sdsrc@stanford for scholarship info
- Parents & Professionals: $199 - Registration Link
- Self-Advocate Conference: $99 - Registration Link
Select Topics: Behavior & Self-Regulation Strategies, Federal Policy Changes & Family Impact, Getting Accommodations into Your Child’s IEP, Accommodations for Adults, Competitive, Integrated Employment (more details in link below)
2024 STANFORD DOWN SYNDROME CONFERENCE
Access Video Recordings & Presentations: https://drive.google.com/drive/folders/1f20Nb6O4oLX61lEBeiuy3wSJDlF6FiF0?usp=sharing
MANY THANKS TO OUR SPONSORS: The Matthew Foundation, Silicon Valley Down Syndrome Network, and Down Syndrome Connection of the Bay Area
2025 Summer Program (Residential/Overnight) for Students with intellectual and Developmental Disabilities
Dates: June 21-July 3, 2025 (13 days/12 nights)
Ages: 18-30 yrs old
Cost: $4,995 (for California Residents, please speak with your Regional Center Case Worker)
Our mission is to help people with Down syndrome lead healthier and happier lives by rapidly and effectively applying research discoveries to useful treatments.
Families with a member with Down syndrome face many challenges and have many questions. We present on this website an extensive and curated collection of references, articles, blogs, news articles, and essays that will be valuable sources of information.
Question and Answers (Q&A) on COVID-19 have been developed to help you support your loved one with Down syndrome. These documents have been endorsed by all the United States Down syndrome organizations, the Jerome Lejeune Foundation, and Trisomy 21 Research Society.
World Down Syndrome Day Celebration
A great day with self advocates and families as we celebrated a Taiko Drum performance and a Sports Day with Stanford Athletes.
2023 Stanford Down Syndrome Conference: Adult and Transition age topics
Adult Medical - Peter Bulova, Director, Adult Down Syndrome Center, Univ of Pittsburgh/UPMC; Co-PI, Alzheimer's Biomarker Consortium-Down Syndrome, Pitt
Mental Health - Dennis McGuire, 28 years of clinical experience, served over 6000 teens and adults; authored “Mental Wellness of Adults with Down Syndrome"
Regression - Jon Santoro, nation's top expert on Down Syndrome Regression Disorder, Assoc Professor, Neurology, Keck School of Medicine, USC
College, Living, Employment, Legal options - Leadership from California State Council on Developmental Disabilities, Think College and self advocates
Access to video and slide presentations: https://drive.google.com/drive/folders/1f20Nb6O4oLX61lEBeiuy3wSJDlF6FiF0?usp=sharing
Many thanks to: SVDSN, DSCBA, T21RS and The Matthew Foundation
Get involved!
Support activities for kids and adults with Down syndrome
Learn about Research Studies
Email info_sdsrc [at] stanford.edu (info_sdsrc[at]stanford[dot]edu)
2022 Down Syndrome Conference
Rafael Pelayo, MD, President, California Sleep Society and Clinical Professor, Psychiatry & Behavioral Sciences, Stanford Center for Sleep Sciences Medicine
Caroline Okorie, MD, MPH, Clinical Assistant Professor, Pediatrics – Pulmonary Medicine, Stanford School of Medicine
DOWNLOAD DR. PELAYO'S PRESENTATION
Download Dr. Okorie's Presentatation
Noemi Spinazzi, Co-Chair, DSMIG DS-Autism Dual Diagnosis Subcommittee and Medical Director, UCSF Benioff Children’s Hospital Oakland Down syndrome clinic
Teresa Unnerstall, Author of “A New Course: A Mother’s Journey Navigating Down Syndrome And Autism”
Please visit The Matthew Foundation website for the presentation slides.