father and son with down syndrome
Rarely in basic or clinical research do we have the thrill of seeing results translated into therapies that transform lives. Such an opportunity now exists within the Stanford Institute of Neuro-innovation and Translational Neurosciences where critical discoveries in the laboratory are being translated into viable treatment strategies for patients and their families.
Craig Heller, PhD, Director

World Down Syndrome Day Celebration

Enjoy the company of other families as we celebrate our loved ones with Down syndrome! Activities will also include a Taiko Drum performance and a Sports Day with Stanford Athletes.  

Join the celebration!

CLICK BELOW TO SIGN UP (Families and Volunteers): 

WDSD Waiver (stanford.edu)

Stanford Down Syndrome Conference: Adult and Transition age topics

PROGRAM - CLICK HERE

Adult Medical - Peter Bulova, Director, Adult Down Syndrome Center, Univ of Pittsburgh/UPMC; Co-PI, Alzheimer's Biomarker Consortium-Down Syndrome, Pitt

Mental Health - Dennis McGuire, 28 years of clinical experience, served over 6000 teens and adults; authored “Mental Wellness of Adults with Down Syndrome"

Regression - Jon Santoro, nation's top expert on Down Syndrome Regression Disorder, Assoc Professor, Neurology, Keck School of Medicine, USC

College, Living, Employment, Legal options  - Leadership from California State Council on Developmental Disabilities, Think College and self advocates

Many thanks to: SVDSN, DSCBA, T21RS and The Matthew Foundation

For Video Recording - $129

2022 Down Syndrome Conference

Importance, Challenges, and Latest Interventions of Sleep

Rafael Pelayo, MD, President, California Sleep Society and Clinical Professor, Psychiatry & Behavioral Sciences, Stanford Center for Sleep Sciences Medicine

Caroline Okorie, MD, MPH, Clinical Assistant Professor, Pediatrics – Pulmonary Medicine, Stanford School of Medicine

DOWNLOAD DR. PELAYO'S PRESENTATION

Download Dr. Okorie's Presentatation

 

Dual Diagnosis of Down syndrome and Autism

Noemi Spinazzi, Co-Chair, DSMIG DS-Autism Dual Diagnosis Subcommittee and Medical Director, UCSF Benioff Children’s Hospital Oakland Down syndrome clinic

Teresa Unnerstall, Author of “A New Course: A Mother’s Journey Navigating Down Syndrome And Autism”

Please visit The Matthew Foundation website for the presentation slides.

Do you want to get involved with the Down Syndrome Research Center?

Email: info_sdsrc [at] stanford.edu

picture of a boy selling baked goods

Our Mission

Our mission is to help people with Down syndrome lead healthier and happier lives by rapidly and effectively applying research discoveries to useful treatments.

Father looking at giggling baby

Down Syndrome Resources

Families with a member with Down syndrome face many challenges and have many questions.  We present on this website an extensive and curated collection of references, articles, blogs, news articles, and essays that will be valuable sources of information.

Image of the coronavirus

COVID-19 Information

Question and Answers (Q&A) on COVID-19 have been developed to help you support your loved one with Down syndrome. These documents have been endorsed by all the United States Down syndrome organizations, the Jerome Lejeune Foundation, and Trisomy 21 Research Society.